Tag: ableism

Evidence of Harm. Effective Advocacy in Education.

Why is collecting evidence of harm so important?

Part of an effective way to advocate for your child is going to be your ability to communicate with the school.

The information that you tell them is going to impact that effectiveness and also trigger certain human rights obligations.

The Duty to Accommodate is established under section 8 of the Human Rights Code of BC.

In order for you to convince the tribunal that your child has experienced discrimination, the first part of the test will be to prove the 3-part discrimination test.

This is from the website of the BC Human Rights Tribunal

Test for Discrimination

“Moore v. BC (Education), 2012 SCC 61. To prove discrimination, a complainant has to prove that:

  1. they have a characteristic protected by the Human Rights Code [Code];
  2. they experienced an adverse impact with respect to an area protected by the Code; and
  3. the protected characteristic was a factor in the adverse impact.

Once a complainant proves these three things, the respondent can defend itself by proving its conduct was justified. If the respondent proves its conduct was justified, then there is no discrimination. If the respondent’s conduct is not justified, discrimination will be found to occur (para. 33).”

In the context of disability, you will need to prove that they have a physical/mental disability that the school was aware of, that they experienced harm, and that this harm was connected to their disability.

We already have it written in a decision that not all negative experiences are discrimination. Their disability must be a FACTOR in the conduct.

X by Y v. Board of Education of School District No. Z, 2024 BCHRT 72
110] ….I accept that these incidents which X relayed to Y were upsetting to X. I appreciate that the interactions may have fed into X’s general feelings of unease at school, but the fact alone that these events may have happened is not enough, in itself, to establish that X’s disability factored into them. Not all negative experiences are discrimination. Even accepting that these incidents occurred, I did not hear evidence that could establish, on a balance of probabilities, that X’s disability was a factor in the conduct of the adults involved in these interactions.

So….. what does this mean as parents?

We need to document the harm.

Here is my blog Documenting the Harm specifically on how to do that.

We need to be able to communicate to the school and connect the dots for them, that what they are doing is creating harm.

As parents, we need to communicate to the school that our child is struggling and this struggle is connected to their disability. This will trigger MEANINGFUL INQUIRY. They must investigate and come up with solutions to try and decrease the impact of harm.

Meaningful Inquiry

[99]           Next, in B v. School District, 2019 BCHRT 170, the evidence supported that the school district provided the child with the recommended supports and accommodations. The Tribunal found that it was “only with hindsight” that it was possible to say that the child could have benefited from more support: para. 81. It dismissed the complaint in part because there was insufficient evidence to demonstrate that the school district reasonably ought to have known that the child required more: para. 98. In contrast here, I have found that the District had sufficient information to trigger some kind of inquiry or response beyond asking the Student how she was doing and, assuming the counsellor did this, advising of available supports.

[100]      In short, I agree with the District that the Parent and Student were obliged to bring forward information relating to accommodation. The Parent did that, when she communicated that the Student had anxiety and trichotillomania and that school was taking a significant toll on her physical and mental health. That information should have been enough to prompt a meaningful inquiry by the school to identify what was triggering the Student’s symptoms and what supports or accommodations may be appropriate to ensure she was able to meaningfully and equitably access her education. The failure to take that step was, in my view, not reasonable. As a result, the disability-related impacts on the Student, arising from conditions in her Language 10 class between April 24 and June 27, 2019, have not been justified and violate s. 8 of the Human Rights Code.

We don’t need to necessarily say overtly, that we are considering filing a human rights complaint. We can communicate in a way that shows them we are taking these issues seriously and one way of doing that is to provide them with evidence of the harm.

It may be through pictures of what has happened or video, but it can also just simply be statements the child has made at home about school or drawings they have done or things they have written down. Feel free to quote your child. Emailing this to the school does create an evidence trail so that if things are not resolved and you do decide to file a human rights complaint, all of these emails will form part of your document disclosure and you can bring them to your settlement meeting.

The respondents (the lawyers defending the school district) are going to make arguments that the school’s actions are justified and that reasonable accommodations were provided.

However, if your child is still experiencing harm, how can they argue that reasonable accommodations were provided? That’s why we need evidence of the harm.

The school district also has the final decision-making power with your child’s education. Parents have a duty to facilitate. Even if we don’t agree with their decision we must not become a barrier to their decision or if in the future we file a human rights complaint, it may be dismissed. Here is the case that created the duty to facilitate.

A and B obo Infant A v. School District C (No. 5), 2018 BCHRT 25

[248]      The School District is not the only party with obligations in the accommodation process. Rather, the parents were obliged, as the Child’s representatives, to work towards facilitating an appropriate accommodation: Central Okanagan School District No. 23 v. Renaud, 1992 CanLII 81 (SCC), [1992] 2 SCR 970. If the School District initiated a reasonable proposal that would, if implemented, accommodate the Child, then the Parents were obliged to facilitate that proposal. Failure to do so is fatal to their complaint of discrimination.

So, if their decision is creating harm, we are going to need evidence of that to show that what they decided isn’t working.

I know this piece of collecting evidence can be really hard for parents. They don’t feel that they “should” have to do this. They feel that this is being too aggressive and they don’t want to upset people at their child’s school. I get it. No one wants to feel that they are in an adversarial relationship with their child’s school. Jumping the shark can be really hard.

When you advocate you can still be pleasantly persistent and communication doesn’t need to be adversarial. However, I haven’t known of any effective advocacy when parents put being viewed as “nice” as their priority, over effective communication.

Here is the Inclusive Education Manual created by Incluison BC for helpful information on how to communicate with your child’s school. Here is Family Support Institute’s Toolkit Resources on education advocacy. And I would also just want to add, that if things get intense…which sometimes they do. Please read my blog on 5 Rules on How to be Untouchable

Document

Communicate

Repeat

And if that doesn’t work….

You have external complaint systems

External Resolution Options in Education

But still, like air, I’ll rise…

History is full of challenges and unfairness. It is also full of legends, advocates, activists, heroes, and system disruptors. Relentless fighters for the good.

Let us start off this week by soaking in the words of the poem I Rise by Maya Angelou. This is a video that I have watched many many times.

With so much happening right now, we need each other now even more. We need community. We need collaboration. We need friends. We need support. And so, like air, I’ll rise. We’ll rise.

I Rise

You may write me down in history
With your bitter, twisted lies,
You may tread me in the very dirt
But still, like dust, I’ll rise.

Does my sassiness upset you?
Why are you beset with gloom?
‘Cause I walk like I’ve got oil wells
Pumping in my living room.

Just like moons and like suns,
With the certainty of tides,
Just like hopes springing high,
Still I’ll rise.

Did you want to see me broken?
Bowed head and lowered eyes?
Shoulders falling down like teardrops.
Weakened by my soulful cries.

Does my haughtiness offend you?
Don’t you take it awful hard
‘Cause I laugh like I’ve got gold mines
Diggin’ in my own back yard.

You may shoot me with your words,
You may cut me with your eyes,
You may kill me with your hatefulness,
But still, like air, I’ll rise.

Does my sexiness upset you?
Does it come as a surprise
That I dance like I’ve got diamonds
At the meeting of my thighs?

Out of the huts of history’s shame
I rise
Up from a past that’s rooted in pain
I rise
I’m a black ocean, leaping and wide,
Welling and swelling I bear in the tide.
Leaving behind nights of terror and fear
I rise
Into a daybreak that’s wondrously clear
I rise
Bringing the gifts that my ancestors gave,
I am the dream and the hope of the slave.
I rise
I rise
I rise.

Mayo Angelou

Exclusion and the Bumpy Conversations Ahead

If this blog were a construction road sign it would say “tough but necessary conversations ahead”.

Exclusion has been brought into the front and centre of society. The media coverage has been wonderful. Thank you so much for all of the brave families who have come forward and shared their stories. We need it. A big thank you to all of the families sharing their stories with Ombudsperson. A necessary and important step in the process.

There are uncomfortable conversations that lie ahead when figuring out how to evolve the education system. We have mixed success.

There will always be that one person, or multiple people, who stands up and says something that makes our hearts sink. When you think of it, this is actually what we fought for. Embrace it. It’s going to get dirty and messy and uncomfortable, but all of this is extremely necessary in order to get where we want to get. Equity. We all need to talk about disability. The tough conversations need to happen and we need to grow as a society. Ableist beliefs are going to surface. It’s not going to be pretty.

Currently, the buzz and rumblings in the education profession is that segregation is a topic that people want to talk about. They question inclusion. They don’t think it’s really working, and we need to re-think separate classrooms. This is actually not anything new. It’s been a conversation that has been happening for a while, it’s never really left us, only whispered in the background. No one was saying it out loud, only now they are. I can understand why those working in the system doubt inclusion because, let’s be honest, our system is failing, for many people, for a very long list of reasons. They witness this failing every single day. Some people are experiencing great success. I wish we heard more of those stories. But many people are struggling immensely and experiencing great harm. Hence the exclusion investigation.

These types of hard conversations are inevitable. Human systems, specifically social issues, swing like pendulums all the time. Conservatives to Liberals back to Conservatives to back to Liberals. Human rights will increase, decrease, increase, decrease. You get the picture. Every country/society experiences the pendulum swing. It is continuous and it will never stop. Some are moving at a faster or slower rate than others. But we all swing. Humanity never stands still. We are always moving. What is that line about change? The only constant is change…something like that.

Stopping the swing would be like standing in front of Niagra Falls with a teacup, trying to stop the water from flowing. BUT, we do get a say and can advocate for how far we swing, and what it’s going to look like when that swing lands.

Re-making very old traditional systems to bend like blades of grass is going to be work. Not going to lie, this is going to require a SHIT SHIT SHIT ton of self-care, community care, and emotional regulation on our part. But it needs to happen. We need the hard parts to happen in order to arrive at where we want to arrive because it is going to take all of us. It needs to be a community effort. Sometimes things need to get really messy before they get better.

We do not want to go backwards in time. We want to move forward.

There is a group theorist who views teams that go through cycles like this, which came from my early university classes over 20 years ago. This visual has never left my mind, though his name has and I have been trying to find it with no success.

The group theory is that we all process change as a society like this.

Teams develop moving up and advancing but we cycle back and hit topics again and again but never in the same way. Never in the same spot.

This is 2025, not the 1980’s. Where would you place inclusive education on the line?

If people think that inclusion isn’t for all kids and some kids benefit from alternative learning spaces and this concept should be expanded to manage exclusion, then what forward-thinking or inclusion-thinking design are we going to create?

Because….

And yes, this is for all of you in the back.

We do not want to go back in time.

Segregated classrooms were accused of literally warehousing people. Making sure students were physically alive at the end of the day. Schools are not mini prisons. Or at least they shouldn’t be. In fairness, EA’s who currently work in the system, have said that even with “inclusion” they still feel like they are babysitting and the students they are supporting aren’t learning anything without explicit pull-out instruction. In the study done by Fraser and Shields (2010) they report that students mainstreamed in classrooms have been “treated as ghosts (virtually ignored), guests (respected but not integrated) or pets (cosseted and pampered) (p. 10).

In 2025, what COULD inclusive education evolve to look like?

Separate classrooms do bring up knee-jerk reaction fear in me. I wonder if people will use this as a loophole to not try as hard. To not invest in professional development. Will we go back to specialist teachers and not insist on disability education for all new and incoming teachers? Some communities need specialist teachers. The Deaf community is an excellent example. If Deaf schools didn’t exist they would lose their language and culture. We can never let that happen. Dyslexic advocates have been screaming for pull-out education time for remediation. It’s never all or nothing for everyone.

Everything in life is on a spectrum. Everything. Sexuality, personality traits, mental health, gender, humour, height, weight, cognition processing, neurodivergent thinking, disability, etc, etc, etc, We are all a natural part of human variation. No one is a mistake. You just literally need to find yourself where you fit on the multiple spectrums that all combined to make up who you are, and I guarantee you, there is a group of really cool people waiting for you.

We cannot have a system that is binary in thinking and design. It’s either this or that.

Humanity doesn’t work like that. We don’t. It’s very interesting to me that we are a species that cannot be compartmentalized and yet this is how our brain works. We need to compartmentalize everything in order to mentally understand things. How ironic is that? Our brains are wired to root for the underdog and absolutely need fairness, yet life is never fair. It leaves us in a constant state of continuous dissatisfaction that propels us forward to have our needs met. 

Having systems that force people into binary groups, will not work.

So here come some really bumpy conversations.

If you are reading this blog and you are not a part of the disability community and think you are immune to the discussion of accessibility, oh phew this topic doesn’t impact me, I can promise you, that you are not.

The reality is, that you and your children are one car accident or one medical emergency away from needing an accessible inclusive equitable society.

So, let’s get cracking folks!

Fraser, F.G., & Shields, C.M (2010). Leader’s roles in disrupting dominant discourses and promoting inclusion. In. A.L. Edmunds & R. B Macmillian (Eds.). Leadership for inclusion: A practical guide (pp.7-18) Rotterdame: Sense Publishers.

What is the Human Rights Tribunal Take on Exclusion?

The timing of this decision was spot on.

This decision was released January 13th and the Ombudsperson announcement was the day after on January 14th.

Student Y by Grandparent S v. Board of Education of School District No. X, 2024 BCHRT 353

I have added this case to my list under the human rights cases tab. I have picked out some paragraphs, but I really encourage you all to read the full case to get the context of what happened to this child and family. The respondents applied for a dismissal and the human rights tribunal decided the complaint should continue.

School Exclusion

There are a few paragraphs in this decision that got my noodle thinking, but for this blog, I want to focus on this paragraph below. Paragraph #52.

[52] From the materials before me, I am satisfied that the School District was actively and intensively involved in attempting to accommodate Student Y’s disabilities from the time that Student Y was in grade one up until the time that she was excluded from school in grade three. However, the question before me on this application is whether the School District is reasonably certain to prove that it “could not have done anything else reasonable or practical to avoid the negative impact on the individual”: Moore at para. 49 [Emphasis mine]. In my view, there is a lack of information in the materials before me that would allow me to conclude that the School District is reasonably certain to do so.

The author of this decision decided to emphasize the words anything else. It wasn’t me that bolded that in the paragraph.

So, this is my guess.

When the human rights tribunal emphasizes ANYTHING ELSE are they eluding to an alternative learning space?

A lot of districts have alternative learning programs for students who need alternative learning spaces. There has been a recent uproar over the closing of a learning centre in the Surrey district with parents and students very upset over its closing with media coverage and rallies. The school districts report funding issues. There was also another family who was in the media, and their son was in a life skills program, and he was excluded due to lack of resources. Without systemic financial planning from the Ministry of Education to keep these alternative programs running, they end up closing and students are still being excluded.

In the face of complete exclusion for some students from schools, will school districts be required to provide alternative learning spaces as their ANYTHING ELSE or face human rights complaints? The school districts already have the power to choose the education program for the student and choose classroom placement. This is from the Supreme Court decision Eaton v. Brant County Board of Education, 1997 CanLII 366 (SCC), [1997] 1 SCR 241 (Notable paragraphs are: 76, 77, 78, 79, 80, 81)

What does the tribunal mean by ANYTHING ELSE? They have already acknowledged the school district was “actively and intensively involved in attempting to accommodate Student Y’s disability”.

We are at the brink of having Ombudsperson and possibly the Human Rights Tribunal (if this case goes to a hearing), set forth some expectations around the topic of exclusion.

After you read this case, what is your guess? What do you think anything else means?

Very interesting times ahead. Very!

Here is a case of exclusion from Ontario.

This case led to the Duty to Facilitate.
https://www.speakingupbc.com/duty-to-facilitate-responsibility-of-the-parents-guardians/

Investigation by Ombudsperson BC – Exclusion

Today is quite the day.

Due to parents filing external complaints to the Ombudsperson BC department, they have decided to launch an investigation to see if these exclusions are fair.

Today makes me think of Judith.

Judith Heumann, the late disability activist has said “Change never happens at the pace we think it should. It happens over years of people joining together, strategizing, sharing and pulling all the levers they possibly can. Gradually, excruciating slowly, things start to happen, and then suddenly, seemingly out of the blue, something will tip.”

Today it tipped.

THIS is why filing external complaints is so important.

We are all grains of sand that make up a beach. Every complaint matters. It becomes data. Change will never happen if we just suck it up, swallow the circumstances that we are in, and never speak up.

We can never SHUT UP! EVER!

File

File

File

Our lived experience needs to spread far and wide.

Everything we do matters. All of it. Nothing is ever wasted. It builds over time. We will never truly know the full extent of the impact that we have on people and how think and may see things differently. We need to keep going.

To all of the parents who have filed over this topic in the past YEARS, you have all been building blocks to make this happen. ALL of you.

Take a breath.

Sleep well.

You did good.

Here is the announcement
https://bcombudsperson.ca/news_release/ombudsperson-investigating-exclusion-of-students-from-bc-public-schools/

Here is the questionnaire
https://bcombudsperson.ca/school-exclusion

Meaningful Consultation

How do we define that?

Meaningful consultation is part of the duty to accommodate. The school districts have a duty-to-consult and it needs to be “meaningful consultation”

Here is the human rights tribunal decision that outlines the district’s duty to consult.

Duty to consult

BC CAISE (BC Council of Administrators in Inclusive Education) in their “A Guide to Meaningful Consultation” manual on page 8 defines it as:

“Meaningful consultation is an ongoing, collaborative effort involving students, families/caregivers, and educational staff, focused on open dialogue and joint decision-making for educational matters. This inclusive process works towards ensuring all voices are heard and decisions are well-informed and clearly communicated. All parties work together towards a balanced outcome, emphasizing recurring dialogue rather than consultation being a single event.”

“When done well, meaningful consultation ensures families/caregivers feel that the school team listens to them and that their experience, knowledge and ideas have been considered.”

“Meaningful consultation encourages open dialogue; it does not mean all parties will agree.”

“When a mutual agreement is not possible, the school team will provide a rationale for their decision-making with regard to the educational programming of the child and ensure ongoing consultation and follow-up.”

Here is the manual https://bccaise.org/…/BCCAISE-Meaningful-Consultation…

If this rationale is not being provided and they refuse to provide it when you ask, you can use this manual and file an Ombudsperson complaint.

I also want to acknowledge that the consultation process can trigger a lot of emotions in us. In order to keep advocating and keep the dialogue going, there are certain rules we parents need to know to navigate this system.

Blog: 5 Rules on How to be Untouchable

https://www.speakingupbc.com/…/5-rules-on-how-to-be…

The Willingness to be Noticed

What is an indication of social change for you? There are TONS of them all around us. Pick one. What is it?

For me? One of the many things I see is that more people from marginalized communities are willing to be noticed. To not blend in… as much. People are more willing to be transparent about themselves and use their own lives as a way to advocate. In small ways and big ways. More people are willing to take up space and be seen and heard. Many have taken up blogging and writing books. The internet for disabled individuals has had a huge impact on our ability to connect with other people who are like us. Technology allows us to express ourselves like never before. Sharing our stories is changing the temperature of the water. By connecting with other people we are forming social groups that are often leading to coordinated advocacy projects.

It’s so interesting to me that when you are on the outside of “typical” societal expectations, or you don’t measure up to the ideal measuring stick, just your existence alone is defiance and a daily protest. If you are trying to live your best life, then you are a change-maker. Attempts to fully participate in society is advocacy.

Being transparent and noticeable can be work. You never know how someone is going to respond to you and you need to be ready at a moment’s notice. That kind of constant vigilance can be tiring. You are also more under surveillance, as all eyes are on you. You are representing a community of people, whether you asked to take on that role or not. You are also more vulnerable to discrimination and you need to be ready for that.

On the plus side, it can be nothing short of pure freedom. To be a caged bird, released.

Masking and blending in with the wallpaper is work too. Feeling trapped is not fun emotional work either. That too can be tiring. It’s really just a question of what kind of work and on what scale do you want to be doing? The work of being noticed or the work of masking? For a lot of people, there is no option to hide. Sometimes not having a choice is simpler. You are forced to dive in. This is your reality and now it’s time to run with it. For those with maskable invisible disabilities, I think it’s very natural to sway from side to side and this decision-making is fluid even within a single 20-minute social interaction.

Whatever decision you make about your willingness to be noticed, and on what scale you decide to share yourself with the rest of us, I wish you all the best in living your best life, whatever that is. Happy New Year!

Understanding Systemic Change

I have recently had someone publicly tell me that the information I post “is already out there and readily available, and what is the point of providing information if it won’t help anyways?”

And “Being NICE and COLLABORATIVE so they will like you is the wrong approach”

And “this is exactly the response system is hoping for: having parents spend a multitude of energy and hours on researching and getting information to “help their child” in the classroom, so they can self congratulate themselves in showing how collaborative they have been with parents.“

This person feels the human rights system is a waste of time. What needs to occur are legislations changes only and anything less than that is a waste of time. They feel the only response parents should be doing is pulling their kids out of the education system.

Here is my response:

Not to toot my own horn, but for this blog, it’s important I place myself in this topic before I dive in. I don’t want anyone to think I am just making this stuff up. It is an informed blog. One of my degrees is in Human Relations from Concordia University, Montreal, with a certificate in family education. I graduated with honors and an award. This degree is about human systems. How people function in groups of all sizes from families to large organizations and societies, systemic change, and how to intervene when systems become toxic.

Some people when they advocate can reach a point when they are beyond frustrated, angry and bitter. Some people have decided to lash out at other people. The very people they are in the trenches with. They end up making it harder and more emotionally draining for parents who are advocating. I don’t think they realize the impact and how upsetting it is for other parents to hear their comments. Crabs in the bucket. My perception is that there is a lack of understanding of how human systems work, and how systemic change occurs and they are frustrated because how they think they should be able to make systemic change occur, isn’t occurring. The wider the gap between our expectations and reality, the more depressed or angry we will become.

I can’t fit everything in this blog about how human systems work, so for this blog I am going to focus on macro-level and micro-level aspects. Macro-level systems are the big ones. The government bodies that include hundreds and thousands of people. They are our political system, the structure of our economy, the structure from the Constitution of Canada and the impact on our system, democracy, our education systems with public schools, private schools, online schools etc. The large groups of multiple moving parts that involve many complex layers, and are maintained by many layers of legislation, policy, and guidelines. Think of many many gears all locked together. They are all moving. Wish to change one gear, and they will all be impacted. These systems have formal codes of conduct and contracts. Also, the unwritten social contracts and social rules that glues everyone together. These systems are tidal wave systems that do not get pushed off course unless something massive happens. I haven’t even mentioned the topic of power. That’s a whole other blog. Systems that are oppressive like to remain that way, unless it’s detrimental to themselves to not change.

Micro-level changes are things that happen on one-to-one individual levels. Individual social interactions. A 20-minute conversation is a micro-level interaction. This is when we advocate with our child’s teacher and they learn something new about ADHD and now they are adapting their teaching and accepting of movement breaks because they understand things differently.

Some people think, that if we only change this one law, or have this one human rights case, or if we change one piece of legislation then everything will be solved for all of the following generations.

I can promise you, if this is how you think, this is where your pain is because that will never happen. Change will never happen because of one person. Ever. We are dealing with way too many macro-level systems all connected and interacting with each other, AND we are dealing with way too many micro-level individual interactions of ableism and lack of information about disabilities. One person is not going to swoop in and solve it all. The education system provincially has hundreds of thousands of people working in these systems. There is not one solution. If we are waiting for a hero to ride in on a horse and save us all, we’ll be waiting for a very long time.

One person cannot change a human system. It takes teams. Plural. And in our society, it is going to take multiple teams all working together with a common goal for a sustained period of time. These teams are going to have to cover ALL different areas and all different aspects of the multiple gears.

There are 4 elements to a social movement.

  1. There is a trigger event that inspires an intense reaction from the community
  2. ALL of the already established community groups come together and work together as ONE
  3. They have a common simple message that the public can understand. (Eg. Black Lives Matter)
  4. The advocacy of this one common message and connection of all of the groups needs to be for a sustained period of time. A long time.

That is a social movement.

Think of the women’s movement in the 70’s. We still have women’s issues today. But women entering the workforce was quite the shift that started it all off. The different professions women are working in today is because of that social movement.

We need to work at both a macro-level and a micro-level. Even if we had a piece of legislation change or a fantastic policy manual from the government we are still going to be dealing with the individual people who are ableists and want power over. Any change coming from the top down and they will figure out ways to get around it, ignore it, and we will still be struggling with the same shit.

It’s not that we just need to get EA standards and everything will change.

It’s not that we just need to get legislation changed.

It’s not that we just need this one class action human rights case.

We need everyone. We need ALL of it. It is all hands on deck. We need every disability organization, we need all parents, we need trustees, we need educators, we need PAC’s, we need unions, we need everyone working in their own corners advocating for accessibility and inclusion.

Anything less than that, and we will not be able to move the needle enough to notice change in this generation.

It takes a micro-level AND a macro-level response.

Social change, where people really feel that the needle moved, that is noticeable… usually takes 3 generations. But not always…

We are in a catch-22 when it comes to legislation changes. The government won’t enact legislation or funding commitments to items that they feel the majority of their constituents don’t want. Their goal is to get re-elected. If they don’t get re-elected they can’t pursue any of their goals. So, if the public doesn’t care about kids with disabilities and their access to an equitable education…. the government isn’t going to put a massive amount of money into that. They need to make their constituents happy. We also know that society is generally ableist. And oppressive. We are also dealing with evolutionary instincts. Humans are complex. We are a mix of beautifulness and survival instincts. When resources are tight, we want them for ourselves.

Everyone’s advocacy efforts are all part of the work. It all matters. Every single one of you. There is no one single solution or even one single group that is going to just fix everything in a couple of years. It takes massive amounts of people ALL advocating in our own corners. Micro-level and macro-level advocacy work. We can’t just change legislation. We need to change the hearts and minds of everyone to uphold and embrace the legislation even if it does change.

Having said all of this: “Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has” -Margaret Mead

Very true. It all starts somewhere. Seeds get planted by small groups that grow over time.

If you are someone who is belittling other parents’ advocacy efforts. Telling them there is no point to any of their work, and that the system will never change. Which is actually impossible, because systems always change. They are maintained by people and society changes all the time. Please, and I say this with love in my heart. Please find counselling or keep your comments to yourself. The human rights process may have been a waste of time for some people, which I am truly sorry. The human rights system enforces the Human Rights Code and creates the Duty to Accommodate which is the strongest piece of advocacy tool that we have as parents, and those cases that advanced the Code were because of parents who sacrificed. You are not helping anyone by belittling all of parent’s advocacy and telling them there is no point. You are now the one making this worse for them. When you make statements telling people to give up, you are now oppressing them. I have zero tolerance for that.

This is a marathon. Not a sprint.

It’s a team sport. We all need to train individually but run together.

Let’s build each other up and be supportive.

For further reading on social change I recommend the book: Let’s Move the Needle. An Activism Handbook for Artists, Grafters, Creatives, and Makers. By Shannon Downey

A book with the title: Let's move hte needle. An Activsim Handbook for Artistis, Crafters, Creatives and Makers By Shannon Downey

Families are Advocating – A Year in Review for Human Rights, OIPC Decisions, and the Media!

It’s been quite a year for tribunal decisions. An explosion of decisions that have advanced the human rights code that I haven’t seen occur in a VERY long time. I hope the school districts are paying attention. They need to stop underestimating people. Families are advocating!

Human Rights Decisions

In the last 365 days we have had the following cases.

Student (by Parent) v. School District, 2023 BCHRT 237 – December 19th, 2023
Key Point Summary Link

This case spread across Canada in over 60 different media outlets into large cities and small towns. Even internationally. Media list blog. Who would have ever predicted that would happen!?!

This case was a partial win by a self-represented parent. There are many key highlights of this case that advance the human rights code. It writes that you don’t need an IEP to be protected under the code, self-advocacy expectations are defined, and the most beautiful part is MEANINGFUL INQUIRY. Anxiety gets pushed under the rug as no big deal in schools. This case elevates the attention and seriousness of how anxiety impacts a student. It also brings up the topic of communicating a diagnosis between staff. It also highlights hindsight and how important it is for parents to be communicating to the school what they are seeing at home.

X by Y v. Board of Education of School District No. Z, 2024 BCHRT 72 – March 8, 2024
Key Points – Summary Link

This case was also by a self-represented parent. It wasn’t a personal win for her, but due to her absolute persistence in completing this case AND waiting 15 months for the decision! It did advance the human rights code and the community as a whole has benefited. The jewel out of this case is that education staff are not allowed to give up. They have to continually keep trying by evaluating and adapting their methods. You would think that parents actually don’t need this in writing, but we do.

The Parent v The School District, 2024 BCHRT 113 – April 2024
Key Point Summary Link

This case was again also by a self-represented parent. It confirms that the human rights tribunal will accept family status complaints from parents in connection to the discrimination or harm that their child experiences in an educational setting. This also links to another family status case that occurred at the BC Supreme Court level that confirmed that the tribunal has the authority to accept family status and education as a valid complaint. A public-facing decision, a turning point for parents with disabilities in education.

Child K (by Ehmke) and another v. Queen of All Saints School and another – May 16th, 2024
Key Point Summary Link

This case confirms that the tribunal is willing to name school districts in human rights complaints. FABULOUS. This case also is clear as a bell in saying to education defence lawyers that using TRB complaints will not be accepted for dismissal reasons. So, parents don’t have to fear that filing TRB complaints will compromise their human rights complaint. If anything, I think they help, as a way to gather evidence that the education staff submit. It’s a gold mine of documents that we can access that we would never even know existed.

SUMMARY: Human Rights Cases are very important advocacy tools to use when communicating with your child’s schools. It is very likely that the staff don’t even know what their legal human rights responsibilities are. These cases need to be APPLIED. Then when we all do this, we move the needle.

OIPC Decisions

We also can’t forget the OIPC decisions that occurred in the past year.

Way to go! Two of them were by parent(s)/guardians!

F24-30 April 15th, 2024 – School District Coquitlam
-Section 14 – lawyer-client privilege

F24-09, February 7th 2024 – School District Coquitlam
– Section 13, Section 22

To read the other previous cases in previous years also by parents, here is the list.

Ombudsperson BC

This case came out this year about there not being an appeal avenue for a section 177. That is huge. Parents who receive these can now ask for what the appeal avenue is and if school districts don’t automatically tell them, then they are not following the recommendations and standard from Ombudsperson BC.

https://bcombudsperson.ca/case_summary/schools-out

Media Articles

We also want to look back and appreciate the media articles that were spearheaded by parents. They brought their issues to the attention of the public via the media. That isn’t easy. Way to go! If parent(s)/guardians aren’t brave enough to do this, the public will assume everything is okay-dookie. We thank you!

August 9th, 2024 – The School System has Failed my Kids – Surrey Mom Speaks out

March 30th, 2024 – Vancouver schools lag on playground accessibility, parents say

March 11th, 2024 – Parents demand fix for staffing shortfall at Vancouver school

March 9th, 2024 – Parents voice concerns over ‘crisis-level’ staffing shortages at Vancouver school

March 8th, 2024 – Parent says school district’s decision comes as a huge relief to parents and students 

Social movements are slow.
And this is what advocacy for disability rights is.
A social movement.
It will always be too slow for anyone’s liking.
Really.
While we wait for change, harm is being done.

Some people feel defeated and think what is the point,
the system isn’t changing.

Change very rarely occurs in leaps and bounds.
Certainly not in human systems.
It’s normal for it to be
2 steps forward,
1 step back,
3 steps forward,
1 step back,

It’s always messy.
Never a straight line from A to B.
More like a zig-zag all over the place.
But this is how humans work.
Especially in large groups.
Societies.
No way to get around that.
Just need to muddle through it.

But we are seeing more advocacy tools pop up.
Decisions and accessibility legislation.
Families are advocating.
More external watch bodies are taking notice.
Change is slow.
But it is occurring.
The roots are growing.

What is scary and dangerous is when the system feels no one is watching.
That they are untouchable.
Then the system will change in leaps and bounds.
It can always get worse.

We need to hold the line.
Send the message that we are here.
We are watching.
We are learning.
We will take action.
And clearly, we have.

Let us focus on this:
Many seeds have been planted this year.
May they take root and grow

To my community of families,
Happy Holidays, and I wish you all the best for 2025.



5 Rules on How to be Untouchable

(Or at least try to be…)

The school district and their lawyers are just waiting for you to do any of the following things listed below…literally sitting back, fingers crossed and waiting. They know what works. They do this all the time.

They can use your own decisions against you in multiple ways. Destroying your credibility at a hearing, filing a section 177 against you, getting your human rights complaint completely dismissed and with costs, shutting down complete communication with you, sending you a cease and desist letter or threatening a defamation lawsuit.

(And before we go any further, trust me, this blog is not from personal experience. For those of you who know which school district I am connected to, please don’t infer, none of these things have happened to me.)

This blog is from reading case law, newspaper articles, finding websites/YouTube videos of pissed-off parents and hearing their stories, hearing stories directly from other parents, and hearing through the grapevine ALLLLL of the multiple other stories floating around our community. This by the way is a national issue, not just a BC issue. So, if you are sitting in a small town in PEI, this stuff still applies.

To the people waiting for you to do any of these things… this is a chess game. It’s not a chess game to us, and its a hard pill to swollow just how strategic navigating the maze needs to be, but we need to realize that this is how its viewed by them. And we need to figure out what the rules are and follow them.

When we follow the rules, we are closer to being untouchable, and we can continue to advocate.

Here we go.

Rule #1 – Always be polite and respectful.

  1. Don’t be rude. Be polite and respectful. Always.
  • Losing your cool and sending in an email that is just blasting them, insulting them, threatening them, etc, etc. is an easy way for them to be all over you and be backed up by the tribunal and court system. This will open the door for them to file a dismissal and get your case dismissed and apply for costs, file a section 177 etc, etc. They are literally hoping you go this route and you make it really easy for them to control you. They can’t wait for this to happen.
  • Sending in your emails doesn’t need to align with exactly how you feel. Your emails need to be written with strategy in mind. Your intent can be to either to document what is happening with the purpose of gathering evidence, to communicate your child’s unmet needs in ways that they can’t claim hindsight later on and trigger meaningful inquiry, to be problem-solving to resolve the immediate issues at hand etc. But making yourself feel better to release the stress valve has the potential of undermining your advocacy and destroying the opportunity for the systemic changes that you are hoping for.
  • It’s a painful part of the advocacy process to think so strategically, but this skill is really really important. I think of it as, we need to become Cheetahs. Cheetahs are loving parents, and affectionate with their young. They are also the most extremely patient and strategic hunters. We need to be cheetahs for maximum efficiency. We can’t let our advocacy efforts be undermined and swept aside because we lose our shit. They will poke us and poke us and just wait for us to explode. We need to have other release values and when we interact with them, we are in cheetah mode.

Rule #2 – No defamation, no naming

2. Don’t name or defame anyone on social media.

  • Defamation is a really easy hook to get you on. Defamation just needs to be said to one other person. It is ridiculous how fast they will jump on this.

See news article below, click to read.

Mom threatened with legal action after questioning B.C. principal who’s now accused of misappropriation
2014 letter from school board lawyer warned against ‘defamatory statements’ about Tricia Rooney
  • That means on any social media site, in conversations with anyone else, you CAN’T name people. You are making yourself way too easy of a target.
  • I took a workshop on defamation. Here are my notes.
  • If you are in a heated battle with the school, keep your circle very small on who you let in. These need to be trusted people in your life. You can talk about your situation, just don’t name anyone.
  • Having fake social media accounts can be ways of interacting with support group FB accounts or posting anonymously can be a layer of protection that will aid in your untouchability.
  • Parents have had human rights cases dismissed and their social media posts were used against them.
  • Trust me, they troll your social media when you become a red flag to them.
  • You never know who is in a Facebook group. Just like it is easy for a parent to make a fake account to protect themselves, it’s easy for anyone to make a fake Facebook account. Facebook groups are public, not private.

Rule #3 – Don’t share confidential information

3. Don’t post content on social media that has the words CONFIDENTIAL on it. This again opens you up to them being able to threaten you with legal action and having the ability to control you.

  • This includes anything from the government that is sent to you in a password protected file or simply has the words CONFIDENTIAL at the top.
  • And yes… this is how the system stays in control and keeps everything hidden. I know. If you want to present this information as evidence in a hearing, that’s a different story. Stuff that is hidden away under privacy laws can still be used as evidence at tribunal hearings and court proceedings. This again is about being strategic about what we do. Be the cheetah. Wait it out. If you play the chess game right, you’ll be able to present the evidence when you need to and maximize your efficiency.

Rule #4 – Don’t protest

4. Do not protest a decision in a school by refusing to leave, or forcing your way into a classroom. Refusing to pick up your kid in the name of protest, I also don’t suggest. You are setting yourself up for a section 177 and you will be accused of not working in good faith with the school, you will not be following your duty to facilitate and your human rights complaint has the potential of being dismissed. If you refuse to pick up your child without good reason in the name of protesting, MFCD may be called.

  • Even if you adamantly disagree with the a decision that the school has made, they have the power to make those decisions whether you agree or not. It’s risky for them if they didn’t meaningfully consult with you, but the School Act and Supreme Court of Canada, do give them the power to make class placement decisions and reasonable accommodation decisions.
  • The only way to maintain your credibility and access to the school is to follow the internal and external complaint systems in a civil manner. I know, that they are the ones controlling the system and this isn’t going to be fair. Totally get it. It doesn’t matter. If you want to give them even more power and have them cut you off at the knees then behaving in a way that makes you non-compliant, or the staff don’t feel physically or psychologically safe around you will end up being a gift to them. It will be so easy for them to file a section 177. Next time you show up at the school the police will be called and you’ll be out the door so fast. Don’t do them any favors. Collect your evidence and nail them in due course. Patience.

Rule #5 – Knowledge and your values are power

5. This rule isn’t a rule on not what to do, this is a rule on what to do. This will also help to make you feel personally untouchable.

  • Know your stuff. That means human rights law, duty to accommodate, and external complaint avenues. Learn as much as you can. Knowledge is power. Ground your arguments in evidence and documentation. Stick to the facts. Don’t over-exaggerate. Don’t lie. Your credibility is everything.
  • This to me personally, is so important. Following your values is the most powerful tool to be untouchable. When you align your advocacy with your values, and how you want to treat people, strength is unlimited. What is your fuel? Unfairness? Systemic oppression? Lying? Even though people may be playing dirty with you, or lying to you, navigating your advocacy with how you want to operate and interact with people can give you a sense of emotional untouchability. It’s called inner peace. And it’s priceless.

Be one with the Cheetah.
Make it hard for them.
Don’t be easy prey.
You’ve got this.